Wednesday, December 5, 2012

How...

DID I MISS POSTING SOOOOOO MUCH!?!? Okay, enough shouty capitals. Elenor's little brother was born! On.her.birthday. Which is really cool when you think about it but also really sad for her. Or for me? I guess I'm sad that I missed her 2nd birthday. But she didn't seem to mind. We took her to the aquarium and to a really fun restaurant. She seemed okay with that. Elenor has been growing really well. She's just over 30" now and about 22lbs. She's been sick this last week so I think we will see her slow down but that's okay. She's doing really well and I'm proud. We have a neurology appointment Friday. This is a follow up from when we went quite frequently when she was an infant. I'm not sure what there will be to say but I think I need to go just to show her off. When we saw all those specialists we heard time and time again about how fragile she was, weak, and how we couldn't expect her to live a normal life. And look at that little firecracker now! :D Her MRI results had come back normal for her condition. She has congenital external hydrocephalus and macrocephaly. There is another term they used too but I cannot recall it, she has a large brain basically. Her hand and hip ultrasounds both resulted in what we already knew. She has lower than average bone age. Expected. Our geneticist has moved back to India and he is greatly missed. Hopefully we will be able to smoothly transition with a new doctor. I really really really really will try harder to do more updates. I hope that our information is helping someone, somewhere.