This is Elenor

Elenor is pretty much the cutest little baby I've ever met (and this is coming from someone who has 2 older kids!) She's ridiculous sweet and loving, so talkative and a little piece of my heart.

March 21st

This was the day we learned that Elenor had external hydrocephalus. The day of her MRI. The day that I felt so selfish because it was horrible for me to be breastfeeding her and not being able to do so from the night before on. Seeing her screaming tiny self so desperately wanting us and having to hold her hand from underneath the table so she couldn't see me.

Besides being very small she was extremely lacking motor skills. She was born with a sacral dimple and a patch of fur on the base of her spine. We weren't sure what it all meant. The findings of the MRI were simple: her spine and chord were intact but she had external hydrocephalus of the subarachnoid spaces.

Later that day we also had hip slides taken to find out if she did in fact have hip dysplasia. She did.

I think that in a lot of ways that day changed a lot.

Walk the Line

Elenor is walking all the time now. Everywhere and in everything! She's crazy!! She will get new SMO's (sure steps) in a couple weeks since we are still seeing a ton of hyper-mobility in her ankles and her arch is still terrible. We are upgrading from bees to butterflies, I hope she loves them. 

We ended up having to stop the growth hormone as she was having a terrible reaction to it. We are fairly confident that she was having a type of maple syrup urine disease come through. Her sweat and urine smelled horrible, like salted maple syrup. She was miserable too, hours after her growth hormone shot she would act like a speeding train. Uncontrollable and sad to angry to happy. Since stopping it she has been healthy and happy but without the awesome growth we were seeing. :(

She had a case of croup last month and that was very scary. It came on so fast and so out of the blue that I almost thought it was whooping cough, alas it wasn't. She is my first child to ever have croup! After a shot of steroids and some oxygen at urgent care she was already feeling a lot better. She bounced back fairly fast and seems to be raring up for summer. 

Elenor recently found out that she is going to be a big sister. I'd love to say she seems excited but at 19 months old I'm not sure she entirely grasps that her world will change in a few months time. ;)