Sometimes you forget how to get online and talk about your daughter. It's like the whole world consumes you and you somehow miss that it's almost March and you haven't posted since right after the New Year.
Elenor is doing well. She is up to 17lbs solid and 27 3/8". Her head has seen another jump gaining almost 5/8". We saw her geneticist just this week (Monday) and found out that I, her mother, am the reason for the duplication in her 2nd chromosome. An exact copy of me if you will. So now we sit and ponder if I'm a carrier for some recessive disorder lying dormant in my genes that somehow managed to unleash and copy itself to form an exact disorder or syndrome. Baffles me and blows my mind. Maybe that's not it at all and she just has some crazy thing that happened that created her issues. Who knows.
We received our growth hormones in the mail yesterday. It was awkward coming up on the porch to this box with a penguin on the side of it (for refrigeration). Opening it up I found a large thermal bag filled with ice packs and two small boxes. Also in the box was a sharps container, alcohol swabs, and insulin needles. We received the pen last week to give the injections. I contacted the genetics office and they told me that we had completed training according to the fax they received (we hadn't talked to anyone or seen anyone!) So, hopefully a nurse will contact us in the next few days to let us know when they can come by and show us how to do things. I'm terrified. Sad to do this to her.
I think the hardest thing is the recent realisation that living this life and dealing with these stresses has caused me to be scared to leave the house. As if I can control what goes on here but I can't anywhere else. I don't want to be that person but today I fully realised that I have almost no control on how I actually feel.
Hopefully things will look up soon. :)
